Thursday, December 25, 2008

This is NOT what I asked Santa for!














It's Christmas. 2008. This year I was given the gift of clarity. I have cancer. It wasn't even wrapped up nice under the tree. Jeesh.

Two weeks ago today I went in for a follow up on the removal of a tumor in my breast. Doctors were 99% sure it was benign. It was healing nicely, so I figured I'd be in and out in five minutes. Well. Not so fast. "Scar is healing nicely...now we have to talk about the biopsy. It's serious." Wow. All I remember after that was the word "aggressive". At that moment a deluge of emotions flooded my brain. So much so that I thought I was going to vomit on the poor surgeon. Room started spinning, and - I'm not gonna lie - I lost it. In a big way. While I had a million thoughts crashing in, the first overwhelming feeling that I had was one of extreme loneliness. I happened to be alone at the hospital, but that isn't why I felt lonely. Next thought was insurance, which at that time, had just denied my surgery a week prior. (more on that cluster f*ck later), then came all the 'Big' questions, ...it was all too real...and surreal at the same time.

Just the night before, I had a naked audition for Mrs. Robinson, concerned about my little scar, and now in a few weeks I have to have a mastectomy, followed by chemo. Whoa. Crazy, right?

I'm the healthiest person I know ~ how does this happen? Indiscriminate Bastard, Cancer.

So, that was December 11. The next day I was supposed to fly to NY to move out my furniture of my NY apt to get ready for the new tenant, and spend five days on a tweener holiday with my friends and family. Instead, I was at the hospital at 7:30am meeting with the plastic surgeon, who explained how he was going to remove my nipples, scoop out my breast tissue, and reconstruct my boobs on the same day. After that appointment, I was off to see the geneticist, who was going to take blood which would later tell me if I have the BRAC 1 or 2 gene (aka the breast cancer gene) This little lovely increases the likelihood to 60% of getting cancer in my right breast over my lifetime, and also increases the likelihood of ovarian cancer. If the test came back positive, I would have a bilateral mastectomy so this bastard doesn't come visit me again down the road.

During my genealogy meeting, the geneticist also dropped the menopause bomb on me. After I told her that I hope to have a child of my own, she looked at me sheepishly and said 'oh, they didn't tell you?...the chemo will likely stop your period and throw you into early menopause.' WHAT THE FUCK?! I was pretty sure that I got all the bad news that could be in store for me the day before. This was an unexpected kick in the gut. Lost it again.

Later I found out that LOTS of women keep their period through chemo, so I certainly plan on being one of them. If determination has anything to do with it, anyway ;) I also heard about women who were actually pregnant when diagnosed and are now healthy mothers to healthy children.

Throughout the first two days, my dear friend Martha was there with me the whole time. She stayed over, hugged me, drank with me, took me to the doctor, and to the airport. My neighbors, Goga and Miguel were also there showing support and positivity. I can't ever tell them how much their love and support means to me.

I rescheduled my flight to NY to the 13th, and left the return open, opting to spend the rest of December with friends and family. It's really weird having a beautiful apt in NY that I can't stay in now! Thank goodness for comfy couches and the best friends on the planet.

NOW FOR SOME GOOD NEWS!.....

FF to three days ago: Got a call from the geneticist with two pieces of GREAT NEWS: Not only did the genetic testing come back NEGATIVE, but insurance covered the $3,000 blood test! whoohooooo all the way around! This means that I'll only have to have one boob off, I don't have an increased risk of Ovarian cancer, and - maybe it was a good omen that insurance would stop this crazy preexisting nonsense and cover the rest of my surgery and treatment!

Next day: I was out to dinner with Joe Joe at Gramercy Tavern, celebrating the test results with a glass of champagne and I got a call from the surgeon with INCREDIBLY GREAT NEWS....Insurance is going to cover the surgery!!!! OMG! Now I don't have to lose everything that I've ever worked for to save my life.

It really creates perspective. I was so happy that Pookie and Arthur pushed me around the Whole Foods that night in the shopping cart.

Now you're caught up til today: Christmas. Sitting at Mom's house, in front of the fireplace, Peanut curled up inside my sweater. Thought it'd be a good time to start my first blog ever.

It was an immediate and natural decision for me to share my diagnosis with people in my life. I don't want to keep it a secret. For me, to keep it a secret, or make it the 'c' word, gives it power that it doesn't deserve. At the same time to deny that it colors my world would be impossible. So, I'm sharing ~for me, and for those of you who are interested in this crazy journey for whatever reason.

I know what it's like to be on the other side of the gurney...when you are the healthy one and it gets awkward or uncomfortable. Do you mention it? Do they want their privacy? Will it upset them if you talk about it? Please, if you are still reading this, and you know me even a little bit, please just be normal. we can't ignore the gorilla, but I don't want to dwell on it. Please call me as much or as little as you normally would. I'm signing up for as much love and light as you lovely creatures want to send in my direction ;)

Future update posts will be more brief, I guess...but this one give you the nuttiness in the nutty nutshell.

I'm back in LA on the 1st. Surgery is on the 7th. I'll be laid up for a while (under Mom's care - bless her) SO....if you are in town the first week of January and the weather cooperates, I'd like to play as much beach volleyball as possible! lemme know!

I hope that you have had a truly joyous holiday with your family - whatever form your family is in. Wishing you bundles of love under the tree.

Merry Christmas!!
love love love
Kimberly

If you'd like to write to me, you can either post here, or email me:
kimberly@kimberlybailey.net







7 comments:

  1. Kim -

    I am SO glad to hear of the good news after hearing the bad. You are in my and Simo's thoughts! I KNOW that you are going to kick this thing in the ass...if anyone can - you can. See you when you get back to the West side! - Enjoy the rest of your NYC trip and please tell your Mom I am looking forward to hearing from her too!

    Sending all my love...

    ReplyDelete
  2. I echo what Makely said - if anyone can beat this, I know you can. Sending lots of positive energy and love your way today and always-
    Annette

    ReplyDelete
  3. Thanks, Kimberly.
    I had a ton of questions that I wasn't sure you'd feel like answering, and this answered them all. Like I said, we're here for you.
    I'd also LOVE to play volleyball so call me if you go.
    Joel

    ReplyDelete
  4. Bailey,

    Why get a fake boob? You can have half of mine! I'll give 'em to you.... FREE!

    I got your boob babe! (I mean back) ;)

    Love you,

    Burger

    ReplyDelete
  5. Dear Kim-berly..!!
    first, thanks for sharing your world and feelings with us, and second, two thumbs up for having the courage of facing it so straight and determined, it only speaks volumes about how big of a fight you will put up. I can already sense your victory!!
    I have no doubts this is just a journey, not a destination.
    Lots of love,
    Marcelo

    ReplyDelete
  6. OH - Just say it out loud; write it whatever it takes - FUCK Cancer!!! I'm with ya all the way!!! I'm glad the Inc. thing is working out - one less thing to worry about. If you ever want to talk please let me know - been there done that as you are aware....
    Sending Hugs your way - Jill aka FU Lumps! (Annette's sister)

    ReplyDelete
  7. OOOOOOOOOO Kim, Kim, Kim!!! Honestly, I'm sitting here wondering... what, why, how, NO!!! I'm just finding you again after 20+ years and not what I expected to hear! After reading this BLOG I've got a whole new perspective on life. Although it must be a hard time you sound so POSITIVE about it!! You're facing it head on so it doesnt have a chance to be the gorilla in the room. You're an inspiration to me....

    FUCK CANCER is right. It can knock the wind out of you for a sec, but dont let it stop you. Wish I was in CA to just be there for you, but I'm in GA and will still be here for you. I'm sure you have great family and friends that are standing right by your side, but one more cant hurt!! ANYTHING you need, I'm a phone call away!! My number is on my facebook page.

    Sending all the positive energy I have your way during this time and will send up all the healing prayers I know for you.

    Be good to Kimmie and keep me posted...

    Love you and FUCK CANCER!!!

    Jackie

    ReplyDelete